Royal Society of Medicine event in the “Medicine and Me” series
Medicine and Me: ME and CFS – Hearing the patient’s voice
Saturday 11 July 2009
Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE
organised by the Royal Society of Medicine and The ME Association, Action for ME, AYME, The 25% ME Group and The Tymes Trust
‘Medicine and Me’ conferences, initiated and developed by the Royal Society of Medicine, are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.
This ‘Medicine and Me: ME and CFS’ conference is organised jointly by the Royal Society of Medicine, The ME Association, Action for ME, AYME, The 25% ME Group and The Tymes Trust.
‘Medicine and Me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share experiences, to hear about the latest research and treatment, to discuss treatment choices and access to treatment, and to question the experts on a wide range of issues.
This meeting will focus on the difficulties and delays in diagnosis, ME and CFS in children and adolescents, the existing range of treatments, and the latest research and its impact on the development of new, disease-modifying treatments.
The audience at ‘Medicine and Me’ meetings typically comprises patients, their families, carers and advocates, representing at least 70% of those present; and clinicians and researchers, representing not more than 30%. Clinicians will include doctors, specialist nurses and all other health professionals involved in the treatment and care of patients with ME and CFS.
This meeting will be suitable for all those affected by ME and CFS
Trainee – Fellow: £30
Retired Fellow: £30
Student Members: £20
Allied Health Professional: £35
Trainee – Non-Fellow: £35
CPD: 3 credits
Registration and coffee
Dr David Misselbrook, Dean, RSM & Ms Jane Colby, Executive Director, The Young ME Sufferers Trust
Chair: Dr Charles Shepherd, ME Association
Diagnosis: the patient’s perspective
Mr Jez Harding, Jez Harding Consulting Ltd, London
A rational, efficient and practical approach to diagnosis
Dr Abhijit Chaudhuri, Essex Centre for Neurosciences
ME in children and adolescents: the patient’s perspective
Miss Shannen Dabson
Addressing the educational impact of ME
Mr Hardip Begol, Department for Children, Schools and Families, London
Treatment: the patient’s perspective
Ms Annette Barclay
Treatment- evidence based and pragmatic approaches
Professor Anthony Pinching, Peninsula Medical School
Chair: Sir Peter Spencer, Action for ME
Research: what do patients want and why isn’t it happening?
Dr Neil Abbot, ME Research UK and University of Dundee
ME: a research orphan for too long
Professor Stephen Holgate, University of Southampton
Chair: David Misselbrook, Dean, RSM
All speakers and Dr Nigel Speight, adviser to ME Association and Professionals Referral Panel, The Young ME Sufferers Trust
Mrs Mary-Jane Willows, Association for Young People with ME
Mr Simon Lawrence, The 25% ME Group
Dr David Misselbrook, Dean RSM
Close of meeting