25% ME Group position statement on the RSM CFS Conference

The 25% M.E. Group

We are taking a position of no compromise when it comes to the Royal Society of Medicine Conference on CFS which is being held on 28 April 2008 in London.

We are also astounded to note that some other M.E. organisations are either advertising (and/or supporting) this conference which is mainly taking a psychiatric view of the disease.

Let’s make a stand in condemning this conference and any M.E. organisation who are supporting this event!

Please see our Statement printed below:

STATEMENT FROM THE 25% ME GROUP ON THE ROYAL SOCIETY OF MEDICINE CONFERENCE ON CFS – APRIL 28 2008
NO COMPROMISE

The 25% ME Group cannot condone the promotion of any psychosocial (CBT and/or GET) management regime as the primary intervention in cases of Myalgic Encephalomyelitis. (ME)

The existing evidence from surveys of over 3,000 patients suggests that such regimes are of limited value and at worst are harmful, leading to increased illness and disablement.

The 25% ME Group stands uncompromisingly for the truth that ME is a World Health Organization classified neurological (ICD10:G93.3) multisystem, physical disease, not a subgroup of any fatigue syndrome. We cannot support any organisation that promotes or supports the inappropriate and dangerous psychosocial model of M.E.

As chairman of the 25% ME Group, I am very distressed to see any ME charity advertising, promoting and supporting the RSM April psychiatric conference on “CFS”. Furthermore I am concerned that they have not highlighted the important biomedical conferences to be held in London (Invest in ME) and Cambridge (ME Research UK), where leading researchers into Myalgic Encephalomyelitis will present new biomedical findings.

I also feel there is no justification for the CEO of AfME to be speaking at the RSM conference, as I believe it will not benefit patients with ME and implies patient-backed validity to psychiatric involvement in ME.

The 25% severe ME group once again calls for Government funding for urgent research into the biomedical underpinnings of ME. It is only by such research that the causes of – and hopefully the cure for this devastating disease will be found. There can be no compromise on this.

11/3/2008

25% ME GROUP

21 Church Street
Troon
Ayrshire
KA10 6SQ

enquiry@25megroup.org

www.25megroup.org

Please support us in this stance as it affects you personally and members of your organisation

 

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