M.E. Peoples Day Events 12th and 15th May 2008

Looking ahead to other UK ME events I have been sent the following by Di Newman, Organiser of the 2008 12th and 15th May Events in London.

All enquiries about these two events should be directed to the Organiser and not to meagenda who has no connection with their organisation.

From Di Newman

Organiser of the 2008 12 May Event, London.

M.E. Peoples Day Events 12th and 15th May 2008

TO BE DISTRIBUTED WIDELY!

Dear M.E. Group/Organisation/Charity and Individual,

Please note the following national M.E. People’s Day 12th May Event taking place in London to mark International M.E./CFS Day, 12th May 2008.

With an additional Thursday 15th May event to celebrate and mark the Houses of Parliament M.E. event which takes place annually.

The two events are taking place on a national basis and anyone affected by M.E. including carers, friends and families or anyone with an interest and/or concern with M.E. are welcome to attend.

Please treat this as an invitation to your committee and also to your members and contacts who are all warmly welcome to attend either or both of the events above.

We encourage you all to participate and to especially advertise both the above M.E. Events in your email mailouts, newsletters and websites:

The M.E. EVENT TAKING PLACE ON MONDAY 12th MAY:

11:00 AM – 11.30 AM Informal Gathering opposite Downing Street, Whitehall, London SW1

12.00 NOON Presentations to 10 Downing Street by a small presentations group and photo-call

12.30 PM Presentations to Department of Health, Richmond House, Whitehall, London SW1

1:00 PM – 2:30 PM M.E. Picnic & Poetry, St James Park (10 minutes walk from Whitehall) London SW1

M.E. EVENT TAKING PLACE ON THURSDAY 15th MAY:

11:30 – 1:15 PM M.E. Picnic & Poetry, the Victoria Tower Gardens (just further along from Houses of Parliament Black Rod Entrance), overlooking the Thames

1:15 PM – 1:30 PM Join Lobby Queue at St. Stephen’s Gate, outside Houses of Parliament

1:45 PM Prepare to enter Committee Room 6

2:00 PM – 4:00 PM (approx) Open Forum Meeting to discuss the current affairs in the M.E. World.

The OPEN FORUM is an excellent opportunity for members of the M.E. community, its charities, groups, organisations and individuals to discuss the current state of affairs in the M.E. World and where we are in relation to: NICE, Occupational Health Guidelines, DWP, the Mental Health Act and Mental Capacity Bill and the implications with M.E., APPG On M.E., the M.E. Observatory, recent Government initiatives, the quality of representation of M.E. sufferers and carers by the national M.E. Charities, NHS-Plus, Charity Commission, Carer Issues, M.E. Clinics and their Services, M.E. Research and a number of other related M.E. topics.

There will be an agenda for the day and people may like to consider what topics they would like to contribute to and prepare any notes and bring along any relevant documents as appropriate. It would be helpful but not necessary to let us know of your chosen subject prior to the event so that we can timetable the agenda.

We can be contacted at 12MayM.E.PeoplesDay_Events@live.co.uk

PLEASE NOTE: Anyone wishing to attend the Open Forum – whether to just sit back and listen, take part in the debate whenever they choose, or those who have made the choice to prepare beforehand are most welcome!

We particularly ask that anyone wishing to attend and listen to the M.E. Open Forum or to partake in it, on Thursday 15th May, in Parliament contact their Member of Parliament to join them in Committee Room Six on the day.

To find out the MP for your area visit: http://www.upyourstreet.com/commons and for a list of Members of Parliament contact details visit: http://www.parliament.uk/directories/directories

We very much hope the 12th May M.E. People’s Events founder and patron, Trev Wainwright will be able to join us at one or both of the events, subject to health and commitments, of course!

The usual “creature-comforts” are highly recommended for both days e.g. extra clothing and waterproofs, fruit, snacks etc. Plenty of refreshments for the duration of the day/s and packed lunches for the Picnic/s are a must.

Mobility scooters and wheelchairs users and anyone who is assisting you are most welcome to both Events. PLEASE NOTE: As a separate entrance to the House of Commons applies to wheelchair and scooter-users (and any assistant) Please make yourself known on arrival to the police officers outside Parliament, who will arrange for a guide to escort you through Security and up to the Committee Room.

Placards of a serious or humorous nature (non-offensive, please!) are welcome to be displayed at the 12th May Gathering, opposite Downing Street. However, please note: NO placards will be allowed at the 15th May House of Commons Event. Thank you!

Kind regards

Di

Di Newman
Organiser
12th May M.E. People’s Day – 2008 Events

Email: 12MayM.E.Peoplesday_Events@live.co.uk

Alternative email address: dinewman1991@hotmail.co.uk

Postal Address: PO Box 775 Peterborough, Cambridgeshire PE1 4WZ

Landline: 01733 552 872

Mobile: 07742 615 952

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