Archive for the Prof Simon Wessely Category

Countdown: Judicial Review NICE CFS/ME Guideline

Posted in CBT/GET, Judicial Review, ME in the media, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely on January 23, 2009 by meagenda

Royal Courts of Justice

Image | bortescristian Creative Commons

High Court Hearing Countdown

Judicial Review of NICE Guideline for CFS/ME

East Block location maps | http://www.nicemecourt.co.uk

When? | 11th and 12th February 2009

Why? | http://www.meactionuk.org.uk/nicejr.htm

What else do I need to know? | http://www.nicemecourt.co.uk  

Whom do I contact? | contact@nicemecourt.co.uk

 

Image FreeFoto.com

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NICE CFS/ME Judicial Review: new YouTube

Posted in CBT/GET, Judicial Review, ME in the media, ME videos, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely on January 6, 2009 by meagenda

The NICE M.E. Guidelines Judicial Review new YouTube video

http://www.youtube.com/watch?v=uojoJ07OktE

“Annette Barclay talks about the impending legal challenge to the NICE guidelines on M.E.”

8.17 mins

by GBCOne

Added 4 January 2008

****************************************************

For information about the Judicial Review and copies of NICE JR related documents by Margaret Williams go to:

http://www.meactionuk.org.uk/nicejr.htm

For a document setting out what a Judicial Review is, what it is not, and how it works see:

http://meagenda.wordpress.com/2008/06/18/judicial-review-judgement-guidance

Supporters’ website:

An unoffical site has been set up for supporters of the NICE CFS/ME Judicial Review, for information and updates for those planning to attend the hearing and for those able to offer assistance with arrangements and publicity. The site can be found at:

http://www.nicemecourt.co.uk/

Please note that ME agenda site and Suzy Chapman have no connection with either of the two legal cases involved in the Judicial Review or with the supporters’ website.  All enquiries about this Judicial Review, including media enquiries, should be directed to the legal firms concerned or to the High Court, as appropriate.  Members of the ME community and their advocates planning to attend the Court hearing or who are able to offer assistance should direct enquiries about arrangements for what is currently scheduled for at least a two day hearing, to the web master of the NICE CFS/ME Judicial Review Supporters’ website.

Previous postings around the NICE Judicial Review are archived under Judicial Review in the Categories list in the left hand sidebar of ME agenda site.

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Documents, NICE CFS/ME Judicial Review: M Williams

Posted in 25% ME Group, CBT/GET, Judicial Review, ME Association, ME in the media, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, UNUM on October 31, 2008 by meagenda

Margaret Williams has issued a series of documents created specifically for the NICE Judicial Review. These are being circulated by Stephen Ralph and are also available from the MEActionUK website.

Stephen Ralph has created a page for all Judicial Review documents and this can be found on a button at the top of the main page of www.meactionuk.org.uk

Alternatively you can find the page directly by clicking on this link:

http://www.meactionuk.org.uk/nicejr.htm

Please note that there is some duplication of documents already published.

Document 1: http://www.meactionuk.org.uk/Background_Information_re_CBT.htm  

Background information and illustrations of evidence that CBT cannot improve ME/CFS which NICE disregarded

Margaret Williams 25 July 2008

Document 2: http://www.meactionuk.org.uk/Facts_re_GET.htm

Evidence that the Guideline Development Group that produced the NICE Guideline on CFS/ME (C53) failed to fulfil its remit

(particularly in relation to the potential dangers of graded exercise therapy)

Margaret Williams 7 July 2008

Document 3: http://www.meactionuk.org.uk/Cardiovascular.htm  

Evidence of cardiovascular problems in ME/CFS that NICE disregarded

Margaret Williams 4 August 2008

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NICE Guideline on “CFS/ME”: Date for Hearing of Judicial Review

Posted in CBT/GET, Judicial Review, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely on October 30, 2008 by meagenda

Margaret Williams has announced a Hearing listing for the Judicial Review of the NICE Guideline on “CFS/ME”.

Read ME UK Events and ME agenda has no connection with the legal cases – please address all enquiries concerning the Judicial Review to the legal team representing the Fraser/Short case and the legal representives for the ONE CLICK case or to the High Court, where appropriate. Enquiries relating to the content of this article by Margaret Williams should be directed to Stephen Ralph of MEactionUK

For a document setting out what a Judicial Review is, what it is not and how it works see:

http://meagenda.wordpress.com/2008/06/18/judicial-review-judgement-guidance/

An unoffical site has been set up for supporters of the NICE CFS/ME Judicial Review, for information and updates for those planning to attend the hearing and for those able to offer assistance with arrangements and publicity. The site can be found here:

http://www.nicemecourt.co.uk/

“This [NICE Judicial Review] is undoubtedly a high profile case. At the preliminary Hearing in June, there was standing room only. The Hearing is listed for 11th-12th February 2009. High Court officials are now busy rearranging the Court venue in order to ensure not only disabled access and facilities, but also to accommodate the coach-loads of people from the UK ME/CFS community who are expected to turn up to witness what will undoubtedly be a landmark legal action that will have global ramifications.” M Williams

Prejudice-based Medicine?

Reasons for Judicial Review of the NICE Guideline on “CFS/ME”

by Margaret Williams

27th October 2008

The full article by Margaret Williams can be read on MEActionUK

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Two UK regional CFS conferences in September and October

Posted in AfME/Action for ME, AYME, CBT/GET, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal College of Psychiatrists, Royal Society of Medicine on September 15, 2008 by meagenda

Two UK regional “Chronic Fatigue Syndrome” conferences in September and October

There are two UK regional conferences on “Chronic Fatigue Syndrome” for medical professionals, students and allied health professionals only, being held by The Royal Society of Medicine (RSM), Wessex Region and The Royal College of Psychiatrists, South West Division Training (RCPsych SWDT) in September and October.  Continue reading

Squeeze the psychs out of M.E.: Prof Wessely RSM presentation

Posted in AfME/Action for ME, CBT/GET, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal Society of Medicine, Sir Peter Spencer, UNUM on July 9, 2008 by meagenda

During his presentation at the Royal Society of Medicine’s “CFS” Conference on 28 April 2008, Professor Simon Wessely referred to “the demonstration Squeeze the psychs out of M.E.” using a PowerPoint slide of the “Squeeze the psychs out of M.E.” graphic to illustrate this section of his talk. I would like to point out that whilst I am happy for Professor Wessely to have included my graphic in his presentation, that the “Squeeze the psychs out of M.E.” graphic and slogan were prepared exclusively for use with the RSM “On a Postcard, please” campaign and that both were initiatives independent of the RSM Protest organised by Gus Ryan outside the RSM building on the afternoon of the conference.

This extract from the closing minutes of Professor Simon Wessley’s presentation to the Royal Society of Medicine “CFS” Conference is not an official transcript. Whilst considerable care has been taken to prepare a fair and verbatim transcript, some errors and omissions may remain.

 

Prof Simon Wessely’s RSM CFS Conference presentation (and PDF of PowerPoint slides)

Epidemiology: Professor Simon Wessely, King’s College London

Webcast available from RSM website (registration required) at: http://rsm.mediaondemand.net/events.aspx  

PowerPoint slides only available to download at:

Epidemiology [PDF 544k]
Professor Simon Wessely, King’s College London
http://www.rsm.ac.uk/chronicfatigue08/wessely.pdf  

Title: Epidemiology counts… [illustrated with 54 PowerPoint slides]

http://rsm.mediaondemand.net/player.aspx?EventID=1293

32.00 mins into Prof Wessely’s presentation [34.38 mins]

These are important, then, because what we’re saying is that any proposed model for CFS, if it’s going to reflect the world as it is, must explain these epidemiological findings, it must explain the genetics finding, it must explain the gender bias, it must explain these links with previous psychological disorders, it must explain why some, but not all agents can initiate CFS and it must explain these complicated links with activity.

Copyright Suzy Chapman

Copyright Suzy Chapman

PowerPoint slide 53: Image: “Squeeze the psychs out of M.E.” graphic from “On a Postcard, please” campaign

It’s not possible, really though, to completely avoid the outside world much as though we would like, and this kind of erm, demonstration “Squeeze the psychs out of M.E.” – and one can understand the emotions behind this – but I do find it hard to sympathise and I also think it’s a great mistake because if you really actually want to understand chronic fatigue syndrome, M.E. whatever we’re going to call it, you have to do so in possession of all the facts – not just those facts that you like, but all of them; you can’t pick and choose and the history of science tells us very clearly that turning your back on erm, things that you don’t like, things that aren’t going the way you want them to, and there are many, many examples of this, at best leads to false conclusions and bad decisions, and at worst leads to bigotry and intolerance.

It is not good enough to dismiss the research that we have described as “nonsense” or those who followed it as “knaves”, “charlatans” or “varlets” because they’re none of those things – if you want to help sufferers you have to see the world as it is, in all its complexity and not just parts of it.

[Image]

PowerPoint slide 54: Image: Front cover: Kings Centre for Military Health Research Ten Year Report
http://www.kcl.ac.uk/content/1/c4/79/73/SW%20Publications.doc

That’s ought to be my last slide but I don’t want to leave it like that as I don’t like it, so this actually is my last slide and this is just finally a kind of personal note – a strange thing has happened, I still see patients every week but I’ve really pulled out of research in this area and I have very little involvement, now, and I’ve done the exact opposite of Sir Peter Spence [sic] there at the back. He’s moved from the armed forces into the world of chronic fatigue syndrome at about the same time as I’ve done exactly the opposite – I haven’t joined the armed forces, by the way, so those interested in the security of the country can be, can be relaxed on that one [laughter] but I have now devote nearly all of my time towards research into this area and erm, if Sir Peter, if things are going as well for you as they are for me in this area then you’re a very happy man because I certainly am, as well. At that point, thank you very much.

[No question sesssion included in webcast]

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RSM CFS Conference Webcasts and Presentation PDFs

Posted in AfME/Action for ME, CBT/GET, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, Royal Society of Medicine, Sir Peter Spencer, UNUM on July 3, 2008 by meagenda

Royal Society of Medicine “Chronic Fatigue Syndrome” Conference 28 April 2008

Webcasts and PDFs of Presentation documents

Webcasts of all ten presentations have now been added to the RSM’s website. These also include PowerPoint slides which accompanied the presentations.

For ease of reference, all links to webcasts are collated in this one posting, together with links for the ten presentation document PDFs. Those on dial-up internet access please note that the PDF for Sir Peter Spencer’s presentation is around 6.0MB file size.

The webcasts are available in four session sections. Registration is required to view these webcasts but this does not take long to fill in and is processed immediately – you may need to log in each time you return to the site.

http://rsm.mediaondemand.net/events.aspx

Introduction by RSM Dean Dr Scadding
http://rsm.mediaondemand.net/player.aspx?EventID=1294

What is Chronic Fatigue Syndrome & what is ME?: Professor Peter White, Barts & the London School of Medicine
http://rsm.mediaondemand.net/player.aspx?EventID=1291

Epidemiology: Professor Simon Wessely, King’s College London
http://rsm.mediaondemand.net/player.aspx?EventID=1293

Pathophysiology: Dr Anthony Cleare, Institue of Psychiatry, London
http://rsm.mediaondemand.net/player.aspx?EventID=1292

Assessment: general practitioners’ approach: Professor Chris Dowrick, University of Liverpool
http://rsm.mediaondemand.net/player.aspx?EventID=1334

Assessment: psychiatrist’s approach: Professor Matthew Hotopf, Institute of Psychiatry, London
http://rsm.mediaondemand.net/player.aspx?EventID=1333

M.E.- The Patient Perspective, Sir Peter Spencer
http://rsm.mediaondemand.net/player.aspx?EventID=1336

Management: NICE Guidelines, Professor Richard Baker
http://rsm.mediaondemand.net/player.aspx?EventID=1335

CBT and GET, Professor Rona Moss-Morris
http://rsm.mediaondemand.net/player.aspx?EventID=1338

What drugs can I use? Dr Alastair Miller
http://rsm.mediaondemand.net/player.aspx?EventID=1337

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

At the link below on the RSM site are links to extra online resources to accompany the conference: These are a single PDF of Speaker Abstracts and Biographies and ten PDFs of Presentation documents. No site registration is required in order to view or download the PDFs.

http://www.rsm.ac.uk/chronicfatigue08/index.php  

Chronic Fatigue Syndrome

Further resources to accompany the conference

Please note all presentations open in a new browser window

Speaker Abstracts and Biographies

Download Abstracts and Biographies [PDF 86k]
http://www.rsm.ac.uk/chronicfatigue08/abs.pdf

Speaker Presentation documents

Introduction, Dr. John Scadding. Dean of the RSM
Only Webcast available (Registation required)
http://rsm.mediaondemand.net/player.aspx?EventID=1294

What is Chronic Fatigue Syndrome & what is ME? [PDF 278k]
Professor Peter White, Barts & the London School ofMedicine
http://www.rsm.ac.uk/chronicfatigue08/white.pdf

Pathophysiology [PDF 311k]
Dr Anthony Cleare, Institue of Psychiatry, London
http://www.rsm.ac.uk/chronicfatigue08/cleare.pdf

Epidemiology [PDF 544k]
Professor Simon Wessely, King’s College London
http://www.rsm.ac.uk/chronicfatigue08/wessely.pdf

Assessment: general practitioners’ approach [PDF 576k]
Professor Chris Dowrick, University of Liverpool
http://www.rsm.ac.uk/chronicfatigue08/dowrick.pdf  

Assessment: psychiatrist’s approach [PDF 225k]
Professor Matthew Hotopf, Institute of Psychiatry, London
http://www.rsm.ac.uk/chronicfatigue08/hotopf.pdf

M.E. – The patient perspective [PDF 6.1mb]
Sir Peter Spencer, Action for M.E.
http://www.rsm.ac.uk/chronicfatigue08/spencer.pdf

Management: NICE Guidelines [PDF 301k]
Professor Richard Baker, Leicester University
http://www.rsm.ac.uk/chronicfatigue08/baker.pdf

CBT and GET [PDF 269k]
Professor Rona Moss-Morris, University of Southampton
http://www.rsm.ac.uk/chronicfatigue08/moss_morris.pdf

What drugs can I use? [PDF 243k]
Dr Alastair Miller, Royal Liverpool University Hospital
http://www.rsm.ac.uk/chronicfatigue08/moss_miller.pdf

“Please note that copyright in the presentations on the RSM’s site belong to the authors listed. Permission must be sought for any copying or other re-use of their material.”

“The Royal Society of Medicine is not responsible for the content of the presentations of the listed authors.”

Apologies for the error in one of the links that were mailed out via Co-Cure e-list, yesterday, this has now been corrected in a follow up posting.

I’d like to take this opportunity of thanking the following: Gus Ryan for organising the RSM Protest on the afternoon of the conference, his two stewards, Annette Barclay and Ciaran Farrell, all those who attended the protest and prepared presentation letters; Joan and Dewi Crawford for attending in the morning and handing out several hundred information leaflets to conference attendees; everyone both here in the UK and internationally, who sent postcards, letters and emails to the RSM in protest against the make-up of the planning committee, the line-up of presenters and the conference agenda – according to the RSM’s Mrs Jo Parkinson, they were “inundated”; all those who raised awareness of the various protests on websites, forums, e-lists and social networking sites and all those who agitated before and following the conference for transcripts and videos of the presentations to be made available on the RSM’s website.

Suzy Chapman,
“On a Postcard, please” Campaign Co-ordinator

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