Archive for the RiME Category

Response from the RSM

Posted in AfME/Action for ME, CBT/GET, ME Association, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, RiME, Royal Society of Medicine, Sir Peter Spencer on April 10, 2008 by meagenda

Yesterday, I received the following clarification from the RSM’s Director of Education and Professional Development, Mrs Jo Parkinson. 

In answer to the questions, below, Mrs Parkinson has responded:

that the Dean of the RSM decided to organise a meeting on Chronic Fatigue Syndrome following the publication of the NICE guidelines;

that there are no sponsors for this meeting;

that the academic planning groups for RSM conferences are set up by the Dean or the Associate Dean;  

that the planning group will consist of a group of experts in the field;

that the planning group decides the topics for discussion and the speakers;

that planning groups never include sponsors;

that there were no external organisations involved in the planning of this meeting;

that in general, ideas for conferences are not proposed by external bodies, organisations or companies.

 

Sent: Monday, March 31

To: Ms Bina Arpino, RSM Administration
CC: Mrs Jo Parkinson, RSM Director of Education and Professional Development

Subject: Concerning the planning of CFS Conference 28 April 2008

Dear Ms Arpino,

It is my understanding that RSM conferences can be planned by the RSM around topics proposed by external bodies, organisations or companies.

With regard to the forthcoming conference on Chronic fatigue syndrome, on 28 April, I should be pleased if you would clarify the following:

1] Was the concept for this CFS conference initiated internally or externally and does the conference have sponsors?

2] If externally, please specify which companies, bodies or organisations initiated the concept and/or have sponsorship status within this specific conference?

If internally, are any companies, bodies or organisations sponsoring this conference and who are these sponsors?

3] Through what process were members of the CFS Conference Planning Committee, other than RSM office holders and personnel, appointed?

4] Through what process were potential speakers for this conference identified, that is:

was the drawing up of a list of potential speakers for this specific conference the preserve of the CFS Planning Committee or did any external body or organisation with an interest in, or sponsorship status within the conference put forward suggestions for potential speakers, and if so, please specify which bodies or organisations and which speakers were identified as a result;

was any external body or organisation not directly involved with the conference or a sponsor of the conference consulted by the RSM for suggestions for potential speakers, and if so please specify which bodies or organisations were approached and which speakers were identified as a result.

Sincerely,

Suzy Chapman

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RiME issues position statement on RSM

Posted in 25% ME Group, AfME/Action for ME, CBT/GET, ME Association, NICE CFS/ME guideline, Prof Peter White, Prof Simon Wessely, RiME, Royal Society of Medicine, Sir Peter Spencer, The Young ME Sufferers Trust on April 7, 2008 by meagenda

Paul Davis of RiME has provided me with the following position statement on the RSM CFS Conference for inclusion in the “On a Postcard, please” Campaign Flyer.

Campaigning for Research into ME (RiME)

RSM Meeting 28/4/08

RiME disassociates itself from the above meeting. This type of forum is not only unhelpful but harmful in that it enmeshes a neuro-immune-endocrine-vascular disease (ME) with a range of other conditions, some of which might respond to psychiatric / psychological models of treatment. That an organisation which purports to represent ME patients’ interests would participate shows the depths to which it has sunk. Instead of fighting the ME patient’s corner, it cosies up to the establishment. I wonder why? Shame on it.

Paul Davis
6 April 08

Position statements issued by the following national ME patient organisations can be found here:

AfME (First statement)

https://readmeukevents.wordpress.com/2008/03/12/afmes-statement-re-the-rsm-chronic-fatigue-syndrome-conference/

AfME (Second statement)

https://readmeukevents.wordpress.com/2008/03/14/further-statement-from-action-for-me-on-rsm-conference-14-march-2008/

ME Association

https://readmeukevents.wordpress.com/2008/03/25/me-association-issues-revised-statement-on-rsm-conference/

25% M.E. Group

https://readmeukevents.wordpress.com/2008/03/21/25-me-group-position-statement-on-the-rsm-cfs-conference/

The Young ME Sufferers Trust

https://readmeukevents.wordpress.com/2008/03/22/the-young-me-sufferers-trust-statement-on-rsm-cfs-conference/

Invest in ME

https://readmeukevents.wordpress.com/2008/03/30/invest-in-me-issues-statement-on-rsm-cfs-conference/

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